"key to my quality of life"
Lydia on 4/20/2020 9:24:13 AM
Details: The blanket bladder and Cool Flow system are the key to my quality of life with anhidrosis and erythromelalgia. At first my face and then my ears became extremely red, swollen, and painfully hot when exposed to light, heat (over 65F), or when I sit/stand upright. Eventually, my back and shoulders were affected, too, and I couldn't lean back or lay down without the skin that was against the fabric overheating. I use the blanket bladder across the top of my bed, covered by a fleece blanket, and the Cool Flow on a low setting. This keeps me cool around 6 hours without getting too cold (skin damage from cold water and ice is a risk with erythromelalgia). This condition is difficult to live with, but five years in, nothing has come close to the relief I get from this. I recently got a backup system, because even though customer service is very responsive and courteous, I don't want to go a single day without it!